Aging parents’ caregiving and rehabilitating a brain-injured son
An autoethnography of a 10-year journey
Keywords:
autoethnography, traumatic brain injury (TBI), caregiving, aging, rehabilitationAbstract
This autoethnography withdraws from information accumulated through a 10-year period of daily-weekly-monthly descriptive observation-recording (triangulated- parents & house-helper) of caregiving and rehabilitating of our brain injured son (survivor/care-receiver). We present it as an interactive voice of verbal conversation, thoughts, insights, and interpretations. It is delivered as a series of articulation intra-pulsated with our interrogation of societal-cultural-religious perspectives, norms and biases, and aligns with the CAP (Creative Analytical Practices) method of Ellis. This autoethnography glows from the richness of information which encapsulates the challenges confronting us the aging parent caregivers, the gradual incremental mind mending achievement of our son, and the interactive verbalizations and thoughts, of the caregivers, care-receiver, and other persons. The overwhelming mental and physical pain and struggle of the survivor and the aging caregivers and their sense of celebratory-satisfaction with rehabilitation progress are highlighted. Interpretation and valuation of positive and negative responses of other persons provide a critical matrix to this autoethnography. We intend to inform other caregivers and relevant healthcare professionals through this autoethnography.
References
Ellis C. Theethnographic I: A methodological novel about autoethnography. Walnut Creek, California;Altamira Press,2004;427 pp.
Hassan STS, Husna J, Rosna AR, Haliza MR. &KhawWF.Mental Trauma Experienced by Caregivers ofpatients with Diffuse Axonal Injury or Severe Traumatic Brain Injury. Trauma Mon,2013,18(2): 56-61.doi: 10.5812/traumamon.11522, PMid:24350153,PMCid:PMC3860681
Hassan STS, Husna J, Rosna AR, Latiffah AL & Haliza MR. Knowledge, prevention strategies, andintervention tactics: Traumas and motor vehicle accidents. Bull.Emerg.Trauma,2013,1(1): 3-4.
Hassan STS, Husna J & Rosna AR. Knowledge paradigm to reduce burden of motor vehicle trafficaccidents. International Conference on Reducing Road Traffic Accident Burden: Challenges and Strategies.Invited Speaker. IR Iran, Shiraz, Shiraz University of Medical Sciences, 27-28 February 2013,Abstractedin the Proceedings.
LeongJWS, Hassan STS& Salawani WHW. Factors Associatedwith Road traffic Injuries among MotorCar Drivers. Abstract Proceedings, Fourth National Nursing Conference,University Malaya 19-20 March2009, Kuala Lumpur.
Hassan STS,KhawWF, Rosna AR, Husna J., Latiffah AL & Haliza MJ. Review on Family Caregiving andRehabilitation of Traumatic Brain Injury (TBI). HealthMED,2012,6(7):2423-2434.
HassanSTS&Husna J.Agingparents’ caregiving and rehabilitating a brain injured son: An auto-ethnography. Proceeding (Abstract) of 7th Malaysian HealthyAgingConference, Berjaya Times Square,2nd-5th April 2014.
Hassan STS, Husna J, Fazah AH, Ali K, Latiffah AL,MohdNorziG,MohdYusoffA, Rosna AR & HalizaMR. A 10-year journey in caregiving and rehabilitation of Diffuse Axonal Injury. Invited Speaker. IR Iran,Shiraz, Shiraz University of Medical Sciences, 27-28 February 2013, Abstracted in the Proceedings.
Hassan STS,Khaw WF, Rosna AR & Husna J. Traumatic brain injury: Caregivers’ Problems and Needs. J.of Nepal Med.Association,2011,51(181): 53-55.
Hassan STS& Husna J. Traumatic brain injury (TBI): Caregivers’ wish list. The Yale J.for Humanities inMedicine. Published 2 October 2010.Available from:http://yjhm.yale.edu/essays/stajuddin20101002.htm,accessed 23 September 2014.
Hassan STS& Husna J. Severe diffuse axonal injury rehabilitation: A five year ordeal. The Yale J.forHumanitiesin Medicine, January2009. Available from:http://yjhm.yale.edu/essays/shassan20090124.htm, accessed 23 September 2014.
Hassan STS,Husna J.,KhawWF,AliK. Traumatic Brain Injury Caregiving and Rehabilitation: Pragmaticand Innovative Approaches. Keynote Address. The 5th International Online Medical Conference (IOMC2012), 4, 5, 11 & 12 March 2012, Abstracted in the Proceedings.
Hassan STS,Husna J., Rosna AR, Haliza MJ & Latiffah AL.Caregiving-RehabilitatingTraumatic BrainInjury: Elderly Caregivers’ Challenges. The 1st World Congress on HealthyAging: Evolution of HolisticAgingin an Age of Change. Kuala Lumpur, 19-22 March 2012, Abstracted intheProceedings.
Hassan STS& Husna J. Traumatic Brain/AxonalInjury Cognitive Rehabilitation: A CaregivingExperience.Keynote Address. The 4th International Online Medical Conference (IOMC 2012), 5, 6, 12 &13 March 2011, Abstracted in the Proceedings.
Hassan STS, Latiffah AL, Norzi MG & Husna J. Mind Mending andMinding: Traumatic Axonal Injury.Program Proceedings14th International Conference on Thinking(ICOT)2009, 22-26 June 2009, KualaLumpur, 2 pp.
Hassan STS& Husna J. 2008a. Modelling Cognitive Rehabilitation in Diffuse Axonal Injury. P. 77, inProgram & Abstract Book, 1st Biennial International Evidence-based Nursing Conference, 27-28 June2008, Kuching, Sarawak, Malaysia.
Hassan STS& Husna J. Mapping Cognitive Rehabilitation in Diffuse Axonal Injury. J.Nurs.Allied HealthHealth Edu. 2008;2(1):1-13. Available from:http://www.scientificjournals.org/journals2008/articles/1354.pdf
Hassan STS, Husna J. & Daud N. Severe Brain Injury: A Case Study for Cognitive and FunctionalRehabilitation. Abstract Proceedings,International Conference on Exploring New Frontiers in Medicineand Health, 1st–2nd August 2006, PWTC,KL, FMHS,UPM, p. 137.
Hassan STS,Khaw WF, Husna J., Haliza MJ & Rosna AR. Caregiving: Societal-filial-environmentalimplication. Proceedings of The 2nd International Conference on Public Policy & Social Sciences (ICoPS)2011, Kuching, Sarawak, 31 October to 01 November 2011, Paper No. 25, 7 pp.
HassanSTS, Husna J, Haliza MR, Rosna AR, Khaw WF. Acquired brain injury; Do we need to care? Bull.Emerg.Trauma,2013,1(4):137-138
Downloads
Published
Issue
Section
License
Copyright (c) 2020 Knowledge Kingdom Publishing
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.