Exploring perceptions of health caregivers on the causes of caregivers’ occupational burnout in institutes of children with cerebral palsy
A qualitative study
Keywords:
Caregivers, Cerebral Palsy, Burnout, Qualitative ResearchAbstract
Background: Providing care for children with cerebral palsy (CP) is hard, energy-consuming, and long-term. Consequently, occupational burnout is highly probable for caregivers.
Objective: This study aimed to explore the perception of health caregivers regarding the causes of caregivers’ occupational burnout in institutes of children with CP.
Methods: This qualitative study was conducted using content analysis methodology during an eight-month period in 2016. Nine caregivers, two managers, and one physiotherapist participated in the study. Purposive sampling method was used to select participants. In depth, semi-structure interviews were used to gather the data. All interviews were conducted at their workplace, in Tehran, Iran. The interviews were recorded, transcribed verbatim, and overviewed. Constant comparative analyses were used to analyze the interviews.
Results: The results were categorized into three main categories and nine sub-categories. The main categories were as follows: care-related stress, nature of caring occupation, and organizational demands and resources.
Conclusion: Results of this study showed that several factors are involved in creating burnout among caregivers. The exploration of these factors may help us in designing appropriate interventions for caregivers to correctly implement caring activities so that they less suffer from care-related pressures and also become able to allocate some time for their own activities of interest and for recreational, social, and family activities.
References
Billeter‐Koponen S, Freden L. Long‐term stress, burnout and patient–nurse relations: qualitative
interview study about nurses’ experiences. Scand J Caring Sci. 2005; 19(1): 20-7. doi: 10.1111/j.1471- 6712.2005.00318.x. PMID: 15737161.
Merlani P, Verdon M, Businger A, Domenighetti G, Pargger H, Ricou B. Burnout in ICU caregivers: a
multicenter study of factors associated to centers. Am J Respir Crit Care Med. 2011; 184(10): 1140-6. doi:
1164/rccm.201101-0068OC. PMID: 21852543.
Takai M, Takahashi M, Iwamitsu Y, Ando N, Okazaki S, Nakajima K, et al. The experience of burnout
among home caregivers of patients with dementia: Relations to depression and quality of life. Arch
Gerontol Geriatr. 2009; 49(1): e1-5. doi: 10.1016/j.archger.2008.07.002. PMID: 18703239.
Rogers JC, Dodson SC. Burnout in occupational therapists. Am J Occup Ther. 1988; 42(12): 787-92. doi:
5014/ajot.42.12.787. PMID: 3223504.
Penson RT, Dignan FL, Canellos GP, Picard CL, Lynch TJ Jr. Burnout: caring for the caregivers.
Oncologist. 2000; 5(5): 425-34. doi: 10.1634/theoncologist.5-6-531-a. PMID: 11040279.
Kanai‐Pak M, Aiken LH, Sloane DM, Poghosyan L. Poor work environments and nurse inexperience are
associated with burnout, job dissatisfaction and quality deficits in Japanese hospitals. J Clin Nurs. 2008;
(24): 3324-9. doi: 10.1111/j.1365-2702.2008.02639.x. PMID: 19146591, PMCID: PMC2632807.
Zahiri M, Mahboubi M, Mohammadi M, Khodadadi A, Mousavi H, Jalali A. Burnout among nurses
working in surgery and internal wards at selected hospitals of Ahvaz. Tech J Engin App Sci. 2014; 4: 79- 84.
Hellesøy O, Grønhaug K, Kvitastein O. Burnout: conceptual issues and empirical findings from a new
research setting. Scandinavian journal of management. 2000; 16(3): 233-47. doi: 10.1016/S0956- 5221(99)00028-7.
Khodadadi A, Ravari A, Sayadi A, Khodadadi H, Jafarinaveh H. Occupational burnout assessment among
nurses working in Iranian hospital of Ali-ebn Abitaleb, Rafsanjan-Iran. Journal of Occupational Health and
Epidemiology. 2012; 1(2): 103-10.
Lin LP, Lin JD. Job burnout amongst the institutional caregivers working with individuals with intellectual
and developmental disabilities: Utilization of the Chinese version of the Copenhagen Burnout Inventory
survey. Res Autism Spectr Disord. 2013; 7(6): 777-84. doi: 10.1016/j.rasd.2013.03.004.
Poncet MC, Toullic P, Papazian L, Kentish-Barnes N, Timsit JF, Pochard F, et al. Burnout syndrome in
critical care nursing staff. Am J Respir Crit Care Med. 2007; 175(7): 698-704. doi: 10.1164/rccm.200606- 8060C. PMID: 17110646.
Decker JT, Bailey TL, Westergaard N. Burnout among childcare workers. Residential Treatment for
Children & Youth. 2002; 19(4): 61-77. doi: 10.1300/J007v19n04_04.
Maslach C. Burnout: The cost of caring. ISHK; 1982.
Krägeloh-Mann I, Cans C. Cerebral palsy update. Brain Dev. 2009; 31(7): 537-44. doi:
1016/j.braindev.2009.03.009. PMID: 19386453.
Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and
classification of cerebral palsy, April 2005. Dev Med Child Neurol. 2005; 47(8): 571-6. doi:
1017/S001216220500112X. PMID: 16108461.
Joghataei MT, Mohammad K, Rahgozar M, Siadati S. Prevalence of some paralysis and limb amputation
disabilities in Iran national epidemiological survey. Journal of Rehabilitation. 2002; 3(8-9): 7-16.
Burkhard A. A different life: caring for an adolescent or young adult with severe cerebral palsy. J Pediatr
Nurs. 2013; 28(4): 357-63. doi: 10.1016/j.pedn.2013.01.001. PMID: 23398894.
Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, et al. The health of primary caregivers
of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics.
; 114(2): e182-91. doi: 10.1542/peds.114.2.e182. PMID: 15286255.
Breslau N, Staruch KS, Mortimer EA Jr. Psychological distress in mothers of disabled children. Am J Dis
Child. 1982; 136(8): 682-6. doi: 10.1001/archpedi.1982.03970440026007. PMID: 6213143.
Grunewald K. Close the institutions for the intellectually disabled: Everyone can live in the open society.
Available from: http://www.independentliving.org/docs7/grunewald2003.pdf
Chappell NL, Novak M. The role of support in alleviating stress among nursing assistants. Gerontologist.
; 32(3): 351-9. doi: 10.1093/geront/32.3.351. PMID: 1500000.
Van den Heuvel ET, De Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B. Risk factors for burn- out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabi. 2001; 15(6): 669-77. doi:
1191/0269215501cr446oa. PMID: 11777097.
Demirhan E, İçağasıoğlu A, Eriman EÖ, Tezel CG, Baklacıoğlu HŞ, Haliloğlu S, et al. Burnout of primary
caregivers of children with cerebral palsy. RISK. 2011; 66: 71.
Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and
measures to achieve trustworthiness. Nurse educ today. 2004; 24(2): 105-12. doi:
1016/j.nedt.2003.10.001. PMID: 14769454.
Schwandt TA, Lincoln YS, Guba EG. Judging interpretations: But is it rigorous? Trustworthiness and
authenticity in naturalistic evaluation. New directions for evaluation. 2007(114): 11-25. doi:
1002/ev.223.
Alarcon GM. A meta-analysis of burnout with job demands, resources, and attitudes. Journal of Vocational
Behavior. 2011; 79(2): 549-62. doi: 10.1016/j.jvb.2011.03.007.
Horng Y-S, Hsieh S-F, Wu H-C, Feng C-T, Lin M-C. Work-related musculos keletal disorders of the
workers in a Child Care Institution. Tw J Phys Med Rehabil. 2008; 36(1): 15-21.
Basaran A, Karadavut KI, Uneri SO, Balbaloglu O, Atasoy N. The effect of having a children with cerebral
palsy on quality of life, burn-out, depression and anxiety scores: a comparative study. Eur J Phys Rehabil
Med. 2013; 49(6): 815-22. PMID: 24285025.
Demerouti E, Bakker AB, Nachreiner F, Schaufeli WB. The job demands-resources model of burnout. J
Appl psychol. 2001; 86(3): 499-512. doi: 10.1037/0021-9010.86.3.499. PMID: 11419809.
Vassos MV, Nankervis KL. Investigating the importance of various individual, interpersonal,
organisational and demographic variables when predicting job burnout in disability support workers. Res
Dev Disabi. 2012; 33(6): 1780-91. doi: 10.1016/j.ridd2012.04.016. PMID: 22699251.
Andersen EA. Working in long-term residential care: a qualitative metasummary encompassing roles,
working environments, work satisfaction, and factors affecting recruitment and retention of nurse aides.
Global journal of health science . 2009; 1(2).
Harrington C, Collier E, Schnelle JF, O' Meara J. Nursing indicators of quality in nursing homes. Journal of
Gerontological Nursing. 2003; 29(10): 5-9. doi: 10.3928/0098-9134-20031001-04.
Bilgin S, Gozum S. Reducing burnout in mothers with an intellectually disabled child: an education
programme. J Adv Nurs. 2009; 65(12): 2552-61. doi: 10.1111/j.1365-2648.2009.05163.x. PMID:
Żołnierczyk-Zreda D. An intervention to reduce work-related burnout in teachers. Int J Occup Saf Ergon.
; 11(4): 423-30. doi: 10.1080/10803548.2005.11076661. PMID: 16329785.
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