Qualitative study of HIV related stigma and discrimination
What women say in Iran
Keywords:
Stigma, Discrimination, HIV, AIDS, Qualitative studyAbstract
Introduction: HIV-related stigma is a major social problem of people living with HIV. Stigma against these people, especially women, interferes with the prevention, diagnosis and treatment of HIV. This study examined the experiences of HIV infected women who were stigmatized, as well as the strategies used to tackle the issue.
Methods: Twenty-five women living with HIV were examined using in-depth, semi-structured interviews. The data obtained was analyzed using content analysis method in MAXQDA10.
Results: The finding of this study was classified into four themes: fear, shame, rejection by family or friends and feelings of frustration. The participant strategies adopted to the perceived stigma and discrimination included isolation, nondisclosure, and loss of follow-up.
Conclusions: HIV in women has different social interposition. It is necessary to intervene, so as to alleviate the effect of stigma on HIV infected women, in order that they gain the ability to accomplish wellness, increase life span and improve quality of life. Nurses, midwives and other professionals need to be involved to ensure public policy in providing supportive environments, and decrease stigma.
References
World Health Organization. Available from: http://www.who.int/mediacentre/factsheets/fs360/en/2015.
Center for control disease. Ministry of Health and Medical Education of Islamic Republic of Iran, 2015.
Rahmati-Najarkolaei F, Niknami S, Aminshokravi F, Bazargan M, Ahmadi F, Hadjizadeh E, et al.
Experiences of stigma in healthcare settings among adults living with HIV in the Islamic Republic of Iran.
J Inte AIDS Soc. 2010; 13(1): 27. doi: 10.1186/1758-2652-13-27. PMID: 20649967, PMCID:
PMC2919446.
Vanable PA, Carey MP, Blair DC, Littlewood RA. Impact of HIV-related stigma on health behaviors and
psychological adjustment among HIV-positive men and women. AIDS Behav. 2006; 10(5): 473-82. doi:
/s10461-006-9099-1. PMID: 16604295, PMCID: PMC2566551.
Dahlui M, Azahar N, Bulgiba A, Zaki R, Oche OM, Adekunjo FO, et al. HIV/AIDS Related Stigma and
Discrimination against PLWHA in Nigerian Population. PLoS one. 2015; 10(12): e0143749. doi:
1371/journal.pone.0143749. PMID: 26658767, PMCID: PMC4675522.
Goffman E. Stigma: Notes on a spoiled identity. Jenkins, JH & Carpenter; 1963.
Seyed Alinaghi S, Paydary K, Kazerooni PA, Hosseini M, Sedaghat A, Emamzadeh-Fard S, et al.
Evaluation of Stigma Index Among People Living With HIV/AIDS (PLWHA) in Six Cities in Iran. Thrita.
; 2(4): 69-75. doi: 10.5812/thrita.11801.
Gagnon M. Re-thinking HIV-Related Stigma in Health Care Settings: A Qualitative Study. J Assoc Nurses
AIDS Care. 2015; 26(6): 703-19. doi: 10.1016/j.jana.2015.07.005. PMID: 26300466.
Simbayi LC, Kalichman S, Strebel A, Cloete A, Henda N, Mqeketo A. Internalized stigma, discrimination,
and depression among men and women living with HIV/AIDS in Cape Town, South Africa. Soc Sci Med.
; 64(9): 1823-31. doi: 10.1016/j.socscimed.2007.01.006. PMID: 17337318, PMCID: PMC4271649.
Duffy L. Suffering, shame, and silence: The stigma of HIV/AIDS. J Assoc Nurses AIDS Care. 2005; 16(1):
-20. doi: 10.1016/j.jana.2004.11.002. PMID: 15903274.
Rao D, Feldman BJ, Fredericksen RJ, Crane PK, Simoni JM, Kitahata MM, et al. A structural equation
model of HIV-related stigma, depressive symptoms, and medication adherence. AIDS Behav. 2012; 16(3):
-6. doi: 10.1007/s10461-011-9915-0. PMID: 21380495.
Parker R, Aggleton P. HIV and AIDS-related stigma and discrimination: a conceptual framework and
implications for action. Soc Sci Med. 2003; 57(1): 13-24. PMID: 12753813.
Karamouzian M, Akbari M, Haghdoost AA, Setayesh H, Zolala F. “I am dead to them”: HIV-related
stigma experienced by people living with HIV in Kerman, Iran. J Assoc Nurses AIDS Care. 2015; 26(1):
-56. doi: 10.1016/j.jana.2014.04.005. PMID: 24856436.
Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and
measures to achieve trustworthiness. Nurse Educ Today. 2004; 24(2): 105-12. doi:
1016/j.nedt.2003.10.001. PMID: 14769454.
Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9):
-88. doi: 10.1177/1049732305276687. PMID: 16204405.
Guba EG, Lincoln YS. Competing paradigms in qualitative research. Handbook of qualitative research.
; 2(163-194): 105.
Lentine D, Hersey JC, Iannacchione V, Laird G, McClamroch K, Thalji L. HIV-related knowledge and
stigma-United States, 2000. Morbidity and Mortality Weekly Report. 2000; 49(47): 1062-4.
Saki M, Kermanshahi SMK, Mohammadi E, Mohraz M. Perception of Patients With HIV/AIDS From
Stigma and Discrimination. Iran Red Crescent Med J. 2015; 17(6): e23638. doi: 10.5812/ircmj.23638v2.
PMID: 26290751, PMCID: PMC4537784.
Abdi IA, Ereg D, Ali M, Rahlenbeck SI. Knowledge and Attitudes about AIDS/HIV in a semi-nomadic
population in Somaliland. J community health. 2013; 38(2): 246-9. doi: 10.1007/s10900-012-9606-4.
PMID: 23014800.
Lohiniva AL, Benkirane M, Numair T, Mahdy A, Saleh H, Zahran A, et al. HIV stigma intervention in a
low-HIV prevalence setting: a pilot study in an Egyptian healthcare facility. AIDS care. 2016; 28(5): 644- 52. doi: 10.1080/09540121.2015.1124974. PMID: 26717980.
Nyblade L, Jain A, Benkirane M, Li L, Lohiniva AL, McLean R, et al. A brief, standardized tool for
measuring HIV-related stigma among health facility staff: results of field testing in China, Dominica,
Egypt, Kenya, Puerto Rico and St. Christopher & Nevis. J int AIDS Soc. 2013; 16(3). doi:
7448/IAS.16.3.18718. PMID: 24242266, PMCID: PMC3833189.
Lekganyane R, du Plessis G. Dealing with HIV-related stigma: a qualitative study of women outpatients
from the Chris Hani Baragwanath Hospital. J Assoc Nurses AIDS Care. 2012; 23(2): 155-62. doi:
1016/j.jana.2011.05.003. PMID: 21715188.
Norman A, Chopra M, Kadiyala S. HIV disclosure in South Africa: Enabling the gateway to effective
response. Renewal working paper. International Food Policy Research Institute. 2005.
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