Phenomenological needs assessment of parents of children with cochlear implants
Keywords:
Needs, Parents, Cochlear Implants, Speech TherapyAbstract
Background: The use of cochlear implants has been a remarkable success in reducing disabilities in those with impaired hearing, which have made a significant change in the patients’ quality of life. Only by relying on cochlear implants, disabilities cannot be eliminated in the hearing impaired, and, alongside this intervention, rehabilitation practices such as through family and community support are necessary.
Aim: To explain the needs of parents of children with cochlear implants to increase the quality of rehabilitation services and family-based interventions.
Methods: A descriptive phenomenology study was performed with the participation of 16 people, including eight mothers, three fathers, and five experts involved with the rehabilitation of children aged 2-7 years with cochlear implants. The research setting was centers with speech therapy service providers for hearing-impaired children in the city of Shiraz (Iran) in 2015. Information was gathered through in-depth interviews with participants and analyzed by using Colaizzi’s nine-step analysis method and MAXQDA (Ver10) applications.
Results: The mean age of participants was 34 years, and the average age of diagnosis of hearing problems in children was 12 months. The obtained data from the analysis of interviews about the needs of parents of children with cochlear implants were categorized into 19 sub-contents and five contents, as follows: the need for access to health care services; psychological needs; mood-related needs of a child; educational needs and financial requirements.
Conclusion: Parents of children with cochlear implants have numerous needs, and they encounter problems based on their situation and experiences. The results indicate the necessity of close cooperation among different professionals such as an audiologist, pediatrician, psychologist, and speech therapist for the program’s success.
References
World Health Organization. Deafness and hearing loss. 2015. Available from:
http://www.who.int/mediacentre/factsheets/fs300/en/.
Zaidman Zait A, Most T. Cochlear implants in children with hearing loss: Maternal expectations and
impact on the family. Volta Rev. 2005; 105(2): 129-50.
Dillon MT, Adunka OF, Anderson ML, Adunka MC, King ER, Buchman CA, et al. Influence of age at
revision cochlear implantation on speech perception outcomes. JAMA Otolaryngol Head Neck Surg. 2015;
(3): 219-24. doi: 10.1001/jamaoto.2014.3418. PMID: 25611857.
Meinzen-Derr J, Wiley S, Grether S, Choo DI. Children with cochlear implants and developmental
disabilities: a language skills study with developmentally matched hearing peers. Res Dev Disabil. 2011;
(2): 757-67. doi: 10.1016/j.ridd.2010.11.004. PMID: 21129916.
Wheeler A, Archbold SM, Hardie T, Watson LM. Children with cochlear implants: The communication
journey. Cochlear Implants Int. 2009; 10(1): 41-62. doi: 10.1179/cim.2009.10.1.41. PMID: 19025886.
Bat-Chava Y, Martin D. Sibling relationships for deaf children: The impact of child and family
characteristics. Rehabil Psychol. 2002; 47(1): 73-91. doi: 10.1037/0090-5550.47.1.73.
Bat‐Chava Y, Martin D, Kosciw JG. Longitudinal improvements in communication and socialization of
deaf children with cochlear implants and hearing aids: Evidence from parental reports. J Child Psychol
Psychiatry. 2005; 46(12): 1287-96. doi: 10.1111/j.1469-7610.2005.01426.x. PMID: 16313429.
Zaidman-Zait A. Everyday problems and stress faced by parents of children with cochlear implants.
Rehabil Psychol. 2008; 53(2): 139. doi.10.1037/0090-5550.53.2.139.
Melnyk BM, Alpert‐Gillis L, Feinstein NF, Fairbanks E, Schultz‐Czarniak J, Hust D, et al. Improving
cognitive development of low‐birth‐weight premature infants with the COPE program: A pilot study of
the benefit of early NICU intervention with mothers. Res Nurs Health. 2001; 24(5): 373-89. PMID:
Cleveland LM. Parenting in the neonatal intensive care unit. J Obstet Gynecol Neonatal Nurs. 2008; 37(6):
-91. doi: 10.1111/j.1552-6909.2008.00288.x. PMID: 19012717.
McKellin WH. Hearing impaired families: The social ecology of hearing loss. Soc Sci Med. 1995; 40(11):
-80. doi: 10.1016/0277-9536(94)00358-Z. PMID: 7667652.
Yucel E, Derim D, Celik D. The needs of hearing impaired children's parents who attend to auditory verbal
therapy-counseling program. Int J Pediatr Otorhinolaryngol. 2008; 72(7): 1097-111. doi:
1016/j.ijporl.2008.03.020. PMID: 18468697.
Chan GK, Brykczynski KA, Malone RE. Interpretive phenomenology in health care research: Sigma Theta
Tau; 2010.
Finlay L. Phenomenology for therapists: Researching the lived world: John Wiley & Sons; 2011. doi:
1002/9781119975144.
Burger T, Spahn C, Richter B, Eissele S, Löhle E, Bengel J. Parental distress: The initial phase of hearing
aid and cochlear implant fitting. Am Ann Deaf. 2005; 150(1): 5-10. doi: 10.1353/aad.2005.0017. PMID:
Quittner AL, Steck JT, Rouiller RL. Cochlear implants in children: a study of parental stress and
adjustment. Am J Otol. 1991; 12: 95-104. PMID: 2069197.
Spahn C, Richter B, Burger T, Löhle E, Wirsching M. A comparison between parents of children with
cochlear implants and parents of children with hearing aids regarding parental distress and treatment
expectations. Int J Pediatr Otorhinolaryngol. 2003; 67(9): 947-55. doi: 10.1016/S0165-5876(03)00160-5.
PMID: 12907049.
Perold JL. An investigation into the expectations of mothers of children with cochlear implants. Cochlear
Implants Int. 2001; 2(1): 39-58. doi: 10.1179/cim.2001.2.1.39. PMID: 18792003.
Purdy S, Chard L, Moran C, Hodgson S. Outcomes of cochlear implants for New Zealand children and
their families. Ann Otol Rhinol Laryngol Suppl. 1995; 166: 102-5. PMID: 7668593.
Richter B, Spahn C, Zschocke I, Leuchter M, Laszig R, Löhle E. [Psychological stress, knowledge and
treatment expectation of parents with a child managed by cochlear implant]. HNO. 2000; 48(9): 675-83.
doi: 10.1007/s001060050638. PMID: 11056856.
DesJardin JL, Eisenberg LS. Maternal contributions: Supporting language development in young children
with cochlear implants. Ear Hear. 2007; 28(4): 456-69. doi: 10.1097/AUD.0b013e31806dc1ab. PMID:
Meinzen-Derr J, Lim LH, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver
experience: Impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol. 2008;
(11): 1693-703. doi: 10.1016/j.ijporl.2008.08.005. PMID: 18819718.
Janjua F, Woll B, Kyle J. Effects of parental style of interaction on language development in very young
severe and profound deaf children. Int J Pediatr Otorhinolaryngol. 2002; 64(3): 193-205. doi:
1016/S0165-5876(02)00069-1. PMID: 12090947.
Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of
hearing children. J Deaf Stud Deaf Educ. 2006; 11(4): 493-513. doi: 10.1093/deafed/enl005. PMID:
Anagnostou F, Graham J, Crocker S. A preliminary study looking at parental emotions following cochlear
implantation. Cochlear Implants Int. 2007; 8(2): 68-86. doi: 10.1179/cim.2007.8.2.68. PMID: 17549804.
Plessow-Wolfson S, Epstein F. The experience of story reading: Deaf children and hearing mothers'
interactions at story time. Am Ann Deaf. 2005; 150(4): 369-78. doi: 10.1353/aad.2005.0046. PMID:
Young A. Parenting and deaf children: A psycho-social literature based framework. London : National
Deaf Children's Society; 2003.
Knussen C, Sloper P. Stress in families of children with disability: A review of risk and resistance factors. J
Ment Health. 1992; 1(3): 241-56. doi: 10.3109/09638239209005457.
Alaee N, Shahboulaghi FM, Khankeh H, Mohammad Khan Kermanshahi S. Psychosocial Challenges for
Parents of Children with Cerebral Palsy: A Qualitative Study. J Child Fam Stud. 2015; 24(7): 2147-54. doi:
1007/s10826-014-0016-3.
Sen E, Yurtsever S. Difficulties experienced by families with disabled children. J Spec Pediatr Nurs. 2007;
(4): 238-52. doi: 10.1111/j.1744-6155.2007.00119.x. PMID: 17956372.
Taanila A, Syrjälä L, Kokkonen J, Järvelin MR. Coping of parents with physically and/or intellectually
disabled children. Child Care Health Dev. 2002; 28(1): 73-86. PMID: 11856190.
Shlay AB, Weinraub M, Harmon M, Tran H. Barriers to subsidies: Why low-income families do not use
child care subsidies. Soc Sci Res. 2004; 33(1): 134-57. doi: 10.1016/S0049-089X(03)00042-5.
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